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Thank you. There are a LOT of people like me, and many of them are children.

I want you to know me because people are more likely to fight for friends rather than strangers. Please understand that I am trying to manipulate you, and I’m really hoping you’ll manipulate others this same way. A lot of people are about to die, and some are already dying.

Please find and share their names and stories, and get others to do the same.

We need to be honest with each other.

I’m sorry. I wish you didn’t have to go through this. You don’t deserve that.

I’m happy to share my story with anyone.

I have a combination of rheumatological and genetic issues, including RA, Sjögren’s, Ehlers Danlos, severe osteoporosis, and a couple of related issues that have caused severe GI and heart issues. I can’t digest fruits or vegetables (they come out looking exactly how they went in) so my diet is severely limited, and I have seizures.

The drugs they’re saying I can’t have anymore include hydroxychloroquine, pilocarpine, prolia, and a few drugs meant to make my life more livable (tizanadin, gabapentin, mirtazapine, and ondansetron).

e: I can’t travel because of the seizures and that being out and about exacerbates my heart condition (SVT and periodic sinus arrest – I have a loop monitor).

I don’t take any opioids or anything like that, only things to keep GI cramps in check so I can at least eat a bit, plus metoprolol er and more paracetamol than is safe, because nobody is willing to even attempt to manage my pain at this point. I’m better at that through means that won’t ruin me physically or psychologically since I’ve had to for my entire life, since I was too small to have choices.

e2: Let me know if you want to know anything else. (edited to be a bit more specific)

Thanks. I appreciate that.

I’m not just talking about myself, but others like me. I’m Lilly Piper, but there are others like me. You can try to save all of us, and I would greatly appreciate your efforts.

Just so these dipshits know, I’m already feeling the cuts to Medicare/Medicaid staffing and services.

I live in the US and rely on Medicare because I’m fully disabled, to the point of being homebound.

Apparently the division that deals with remote visiting technology has been cut, so they can’t legally fill my prescriptions anymore unless I physically travel nearly an hour to their office every 3 months to remain eligible, and my doctor can’t legally renew medications that I’ve been on for 20 years. Within a couple of months I’ll have to stop taking all of my long term maintenance meds because I cannot travel to their office.

This will remove all my quality of life and will kill me slowly. I don’t want to die slowly of neglect, so I’ve got a decision to make, and I’m putting it off because I really don’t want to die yet.

I don’t know what to say except I have a name. I’m Lilly Piper. I’m a very good user experience designer, a pretty good writer, and decent friend.

We’re not faceless or nameless. I just want someone to remember that there are names behind these policies.

I’m good at sewing; I make period correct corsets from the 1800s and before (proof and more proof).

I’m actually great at sewing. I do embroidery and am a great listener. I’m also a good writer and editor. I didn’t need to die like this, but I won’t be homeless again, and I won’t beg in the streets for medicine. I just won’t.

e: links

I really liked that series when it came out. Now it hurts to watch.

If you didn’t vote, you voted for this. This is a representative democracy, and voting is the absolute least you can possibly do.

You don’t get out of your civic duty by abstaining – you’re implicitly supporting the winner by failing to do the bare minimum. You’re doing far worse if you uttered one sentence to convince others to abstain with you, which many, many did.

Unless you live in a literal cave, you’re complicit.

Good job everyone who advocated for 3rd parties or abstained because this ghoul was ‘the same’ as Biden or Harris. I hope you’re sleeping well that razing Gaza is the same as not doing that.

Great work. Perhaps you’ll get a discount on the new trump branded resorts they’ll build on that land, which we fucking warned you he wanted to do years ago.

I’m done trying to warn people. You won’t fucking listen so I’m wasting my breath, and these ‘I told you so’s just taste too bitter.

Wake me when you’re ruffling the ashes of your own countrymen from your hair (or don’t, because I’ll be seasoning your egg salad with what’s left of my bones).

e: MItHC reference, and since I’m both disabled and queer, I’m going down with this ship