• IcyToes@sh.itjust.works
    link
    fedilink
    arrow-up
    1
    ·
    edit-2
    18 hours ago

    Glad you’re feeling better today. Hopefully it stays that way.

    Post-exertional malaise is the worst.

    If I push myself in any way, I get a flare up of symptoms so I don’t feel I’ll ever get better. Back ache and fatigue (physical or mental)are a constant. Live by hot water bottles or heated pads.

    Had it worse in first year with brain fog, chest pain etc. Can walk now fine but anything more and I’ll get a reaction. Need to constantly watch myself and rest frequently.

    In summary, it sucks, but I’m used to it now.